News from around the world

Abstract

AIM

The activity carried out by the Association in the fourth quarter of 2023 was mainly focused on a broad planning and support of both national and international events. Among others, to be cited the sponsorship of the course on “Motor Rehabilitation in Muscular Dystrophies” held on Saturday 21 October 2023 in Fontanafredda (PN) and the contribution to the development and organization of the 4^th eNMD Congress, that was held in Munich from 2 to 4 November 2023 (see the report below).

The activity will continue in 2024, with an event entirely organized by AIM on “Congenital myopathies”, which will be held on January 19, at the Bambin Gesù Hospital in Rome.

Also noteworthy is the intense activity of the study groups, such as that of myasthenia, which expanded after the National Congress in Padua. The next Congress of the Italian Association of Myology will take place in Rome, from 5 to 8 June 2024.

Further information is available at the Association website: https://www.miologia.org

ANIL

The Association of the Italian Network of Laminopathies (ANIL) was established as a legal entity in Bologna on July 14, 2023, with the aim to promote biomedical and clinical research on Laminopathies. The Association is open to all those who want to share its perspectives, statute and regulations.

The first ordinary assembly of the Association was held on October 13^th in Bologna, during the the XXVII Meeting of the Italian Laminopathies Network. On that occasion the Board of Directors was elected as follows:

President: Giovanna Lattanzi

Vice President: Chiara Lanzuolo

Secretary: Giulia Ricci

Treasurer: Luisa Politano

Members: Sammy Basso, Eleonora Cugudda, Lorenzo Maggi

Registrations to the Association are open. The application form and procedures are available at the Association website: https://www.igm.cnr.it/laminopatie/

e-NMD

The 4^th eNMD conference in E-health & innovation to Overcome Barriers in Neuromuscular Diseases was held on 2-4 November 2023 in Munich. The highly timely congress was attended by more than 120 participants, such as physicians, researchers, and industry partners, who follow the various aspects of the diagnostic, therapeutic, and rehabilitative path of patientsa suffering from neuromuscular diseases. The main topic of this year was: “Digital biomarkers and digital therapies: New solutions for New Avenues in Neuromuscular Disorders” and a high-level scientific faculty coming from all over the world contributed to the success of this event, which was of great inspiration to all participants. More to come; please review the congress proceedings published in Acta Myologica,VOL. LXII, SUPPL. 2 - 2023.

The 5^th ENMD Conference will be held in Taormina, Italy, in November 2025.

Benedikt Schoser

on behave of the eNMD organizing team

MSM

The 14^th Meeting of the Mediterranean Society of Myology (MSM) is moved to the 2025. Proposals to organize and host the event are welcome.

WMS

The 28^th International Annual Congress of the World Muscle Society took place on 3^rd-7^th October 2023, in Charleston, South Carolina, United States. The congress venue was the Charleston Convention Center at 5001 Coliseum Drive, that is part of the Coliseum, Performing Arts Center, and Convention Center campus.

Both oral presentations and e-posters were available via the platform and app for delegates who wish to participate virtually. The main thematic topics of this congress focused on translational medicine were:

Topic 1: Understanding phenotypic and genetic diversity in neuromuscular disorders

Topic 2: Pathobiology of neuromuscular expansion disorders

Topic 3: The effect of lifestyle, exercise and nutrition on neuromuscular pathology and outcomes.

Following the longstanding tradition of the WMS, the meeting was preceded by a teaching course, on 2-3 October 2023. Further information is available at the WMS website https://www.wms.com